Stories about the personal and family impact of FSHD More
More Information on FSH Stories
FSHD is the most common form of muscular dystrophy. It is a genetic disease that results in progressively worsening muscle weakness across time. Fatigue and chronic pain can also be feature s of the disease. There are currently no effective treatments or a cure. FSHD affects not just the individual suffering from the disease but also impacts on family members who provide support and care. The FSH Stories community has been created as a space for individuals with FSHD and family members to share their stories, as well as their hopes and dreams for the future. FSHD affects each person differently. Being able to hear the stories from many people will help broaden everyone's understanding of the impact of the disease.
By clicking "Remove this Member" below, you will remove this member from this community. All interviews associated with this member will also be removed. THIS CANNOT BE UNDONE. Please be sure you understand this action before proceeding.