Marti & Scott

Description

Shortly after Marti's daughter Julia was born she was diagnosed with incontinentia pigmenti. It was affecting her central nervous system and the doctors didn't expect her to live more than a few years. Marti learned everything she could about this genetic disorder and was determined to make sure Julia had a great life. Being her primary caretaker, Marti has done just that. In return, Julia has brought joy to everyone's life she has encountered. Julia will celebrater her 32nd birthday later this year.

Participants

• Scott X
  
• Marti X
  
• Hear Me Now Providence
  

Interview By

• Hear Me Now Providence