Oliver Frometa and Yessenia R.

00:00 Hello, are you rolling? I was wanting to say that in a little thing. My name is Oliver from it. I'm 20 years old. Today's date is August 27th. 2019. I'm here in my home in New Jersey and I'm here with my mom and my name is today's August 27th, 2019. We are right now in New Jersey and I'm out of his mom.

00:33 And I'm also

00:37 Bit lost. I don't know what to talk about Philistines possible questions up here.

00:42 Okay, so at least play a game tell me about me. Well, what are some things about me tell me about me. Do you want to know about our love story to tell you that was so funny? Not too far before you I was

01:17 You were trying to say something. I'm going to speak in Spanish. So the world can understand what I'm saying.

01:24 You don't know how much a multimeter.

01:28 Little Miku diosa exactly the way that you are and

01:36 I will guess it came a body Kombucha tea.

01:40 Is an O A. I didn't want nobody to tell me things. I want to.

01:47 Discover myself exactly the way that you are not so friendly.

01:56 Napa sonoline ween

01:59 Introspectiva

02:04 Sparrow Mike Rudy Rosa

02:07 I think you and the other c v conocer then we we can marry.

02:24 And we decided yeah, we just and the night is just you know to go so deep that wasn't the night and we decided that we have we want to have a baby right away. You'll get at the name baby. This a photo not maintain Jose.

02:55 Aloha gominola-bear was in the belly.

03:02 I've always wanted to ask this and I kind of know but why why why why why that name out of all names in the world by Oliver said different stories. I know I could be Oliver Twist. I love her. Okay, that was a call. I think that gyro Demi Moore, okay.

03:28 And her son was named Oliver And I said Okay. That's the name I want for my dad sample. Can you imagine something more emotional. Watching a TV or movie with your father, you know raining day eating popcorn. That was amazing. Sorry. Can you do the Massimo cellino intercept interesting things that we have at back and the time was watching TV you feel like it was you were doing something amazing exactly.

04:28 Amazing

04:38 Can no Todo. No Todo Lo quiero.

04:43 Or sophisticated

04:46 Can bring joy to your life.

04:49 Doing simple things like watching TV and name your child Oliver.

04:55 What's something really really good? So simple things can bring you a lot of Joy. I took pictures of my belly to Mom's for months 6 months and I have all those features, you know, my belly growing a picture of you since you are, you know, just cooking it.

05:31 And in what about like at like after me cuz I was I know that I was born in the talking about like it on this now. I think I was born normal right Anacortes a normal. I was a healthy babies. What I'm trying to say is right like a yeah, you were no problem during my pregnancy.

05:58 What's a natural birth?

06:03 Really really beautiful

06:07 Little creature

06:10 You know, everything was ripped your nose your ears your lips. Everything was read. Everything was okay. I remember that.

06:28 The doctor

06:31 Pediatrician she said to me all look at your baby. But I was so in pain. For some reason. I saw your eyes old black and I say to my to my an inside my mind on my God. I was not supposed to see the movie of it. That's not come to my mind, but I think it was because of the

07:07 It was like 1 in the middle of the night and me and your father were painting your room and setting up the the creep and everything.

07:20 We went to sleep like around 1:30.

07:24 At 3 a.m. I wake up cuz I wanted to go to the bathroom cuz I have for myself. I wanted to go to the p.

07:34 And I came back to the bed.

07:38 And I said, oh my gosh, I have to go back and do more pee.

07:42 Then I realized I my pee doesn't stop it. What kind of pill is this? What at what I drink?

07:51 Then I went back to to the bed. I'm right in front of the bed. Then water was coming out of my belly and I say okay by Wisin something's going on with my penis. You know, what's going on? The only one that didn't know it was me by 4:30. I was in the hospital for 7 p.m. You will sound best US Army to you know, Siri.

08:47 I was already in the room.

08:51 And around 10:30 or 11 I met you.

08:59 When they brought you to the room you wasn't that little creep.

09:05 And you started laughing.

09:08 Okay, haha. Like a little smile tomorrow, but you was not smile. Hahaha in the room. So they hard you okay?

09:43 You never stop laughing.

09:46 Yeah, that way your particular way or you know of do it with a dimple. Yea, though. I was amazing really really big baby. You're like almost 10 lb call the doctor told me. Okay, you have one more you going to be that Betty? Okay, so what you do? So how long did I stay inside the hospital for you? Like I was 12 noon.

10:36 They gave me rice and beef to eat. So, okay. So what was likely veb when you first got what it what was the first thing you did? Okay life is know what you have a baby now. Oh my God, he's a really pretty baby and they look at me. Are you sure you're the mother working at the same time all the neighbors they want to go to my house. How can I have a baby and they to to kill today or home anyway, but yeah, that's a lot of presents everybody loves. You know, you was a really really really beautiful baby. Then the most amazing thing about you being a baby.

11:38 You start walking at 10 months.

11:42 Can more than you just got up and you was running?

11:48 No pee during the daytime.

11:54 No pee during the day time since you was 10 month no more pee in the pants.

12:00 When you was like one year old then you stop doing pee in the bed. So it was so economic, baby.

12:12 So I know diapers.

12:18 New Mexico Bank exactly

12:30 Then your first war was Moon by in Spanish Luna. That was the first word and you were around almost.

12:44 By 10 months 11-month something like that. I was the first war Because You Loved the moon and every time that I took it to the balcony you pointed with your fingers and I say yes, that's the moon and that's the first war that you say Moon.

13:11 What else the only different thing?

13:18 That made me go to the hospital multiple time is that I realized that you have a lot of

13:27 Cold by cold

13:32 And I had decided anyway, I had to bring you one in your little baby. I had to take you to the hospital often for your machines and everything, but I have to go to the hospital because you always have cold.

13:48 They gave me a lot of medicine in medicine and medicine and a lot of problem with the ears. That was something only show that I have when he was a baby.

14:00 When You Reach 2 years old then you have chicken pox

14:08 Any will terrible the most terrible thing that I have ever see you you have little gone the Posada miles and everything a lot of fever.

14:25 So that's when the problems start.

14:30 The doctor says.

14:35 You might have something cold.

14:39 I forgot the name.

14:41 There's something strange to me. Not very very common. They test you for also.

14:58 Tuberculosis

15:01 And there was a doctor that says that she had the right to say. Yes that you have tuberculosis even when the

15:10 Test says no, but because I'm saying you I think you do.

15:17 Gyros acoustica cystic fibrosis after after she say no that was tuberculosis.

15:27 Then another doctor says no you never have to record losses. So you have a 65 roses. They test you even when the test says no they say yes. That's why you have and that's the reason why the penetration she said, okay, we don't have we might know a little bit about this illness, but we don't have like the right medicine and those things that he might need for that condition. So I suggest you to take him to America to the United State.

16:02 That's when we decide to move here.

16:05 When we came here.

16:08 The first state that we were

16:13 When we came here was, Rhode Island.

16:18 Try to get to the Mass General in Westchester in Boston, Massachusetts. They said no he never has he he have no cystic fibrosis, but we don't know what what exactly is going on with him.

16:37 So they treat you and few weeks after we came here. You will see normal you was reading fine and everything was fine, and we decided to go back to the mannequin Republic.

16:53 When we get there, then you started getting congested congested again and everything was like in Reverse you never stop coughing and coughing and coughing all night and six six six six months after I had to come back to the United States.

17:17 As soon as we got here, I took you to the Nyack Hospital cuz I was leaving in when we came back. I was in in Haverstraw, New York.

17:30 So the doctors don't have a sword a referral me to the Nyack Hospital.

17:38 When I got there the one of the doctor told me.

17:42 I want you to see one of the best allergies if he cannot to find what's going on with your son that nobody's going to find it.

17:52 That's when I met dr. Rubenstein you was 4 years old.

17:58 The man yeah the man when he saw you he fell in love with your dimple. You cannot escape from his and his love his care is one of the most amazing human being with like the Hulk. He's a big nerd before all this stuff like for for like fascinating things. He remembers I remember speaking to him.

18:33 Like all the test results from that day you remember that he remembers exactly what each number is number what they look like how they tended to go up or down or whatever and he was my father for a bit like you while you was he was like my my guardian for a minute.

18:58 I chose no like five or six words in English.

19:03 So I remember at some time he told me you sent you. Do you understand what I'm saying? And I say yes. Okay. I'm trying to forget it out in my mind. They says what's going on. It's really serious.

19:23 And we going to try to find out what's going on. We have more questions than answers, but I promise you that I'm we going to do the best to find out what's going on.

19:36 So easily it's been like a male all this years. He's kept his word with that. He hasn't disappointed until now we've been into good care and hands and I feel that it's

19:55 For city of Miracle how we were able to leave first leave Dominican Republic and land here. I think that's a big jump in a minute in like a miracle and I can leave you. Like I said, that's one one miracle in my life in the second one is continuing on like not knowing what I have.

20:15 And and being resold with what I have not knowing what I have is another like

20:24 What can I say in this whole journey?

20:30 We have made a lot of good doctors. A lot of people a lot of people wish I don't remember their names because the names in English is too difficult for me to remember not even repeat the name, but that's a lot of angels that that's the way that I will call it angels. I remember pulmonology.

20:55 Dr. Needleman and the Japanese one. I remember Dr. Bell Vacaville was a

21:10 Hematology and he was a Jewish guy really skinny and so, you know professional but he likes a Libra and a Libra likes to ya kid Roblox join blood. It never makes me cry because I used to hate that so easily God Dracula's you to see you Dracula dragon has arrived. It's like that in like hey, I'm leaving here Dracula answers like good evening and a good good way to put up with a lot of people put up with Oliver at this point. I remember one time they decided to

22:07 Take in nahuatl link Neal.

22:13 They took several.

22:15 And they say okay now the world's going to know Ali because I'm going to send pieces of Oliver all over the world.

22:24 And maybe that was a joke, but I think a lot of people knows about you. So sometimes life.

22:36 Pouyas us

22:39 In circumstances that maybe

22:42 Courage is not good for you.

22:47 But something that I had clear in my mind and and I always tell you.

22:54 God place you and situation to show his glory and to show that he's power is unlimited and the show the word that may be safe and sound says he doesn't matter how hard it is or how

23:14 Tough in my herd

23:18 But you still might be a blessing all depends on you how you want to project yourself how you want to take?

23:28 This situation if you feel

23:32 Like an episode or you might think that you are so lucky to show the world that you still can do a lot of things.

23:44 Despite all these all these circumstances

23:49 Yeah, and I think it's served me more.

23:54 As a blessing.

23:56 You know 10 then I say like a like a disability. I think it's been a blessing to me because I've been able to

24:06 See things where where other people are blind, you know, I I know the value of a minute.

24:15 Of time of like I was just speaking to my mom yesterday about like

24:21 Values values end

24:25 What I've learned, especially with with this illness is the value of time.

24:31 She she didn't like the idea but it's a big lesson that I've learned because knowing that you have surgery tomorrow or like you can drink for the next 24 hours. You kind of Valley those minutes a bit more than usual and some people are not able to do that.

24:51 You know, that's why it's it's had its bad moments, but I've learned a lot of things.

24:57 I'm feeling feelings that are normally not accessible to the people that don't have illnesses, you know.

25:08 It's his own unique Journey.

25:14 From my point of view

25:16 You know, and there's a lot to learn from from mine.

25:21 You know.

25:23 It's not like it's not like I don't like the idea is most like I have a different point of view my

25:37 My eyes, it looks different from your eyes. You probably have a different because in life you see life from your poem.

25:53 M4 forward I look I see Life from my point backward.

26:03 And what I was saying to you and I'm going to repeat it again isn't a go. I want to leave this moment because God gave me the opportunity to be here and now

26:17 And my point of view because of my age is okay. I am here and I had every time I ask for what's going to happen tomorrow and sometimes we forgot that guy got already gave me 44 years and when I look backward and I say, oh my gosh, that's a lot that you already. I already gave me is gratitude. You already gave me a lot of a lot of years 44 years. He didn't Morrow is alive and it didn't she can can you put everything in a lot like and what's the name of that site that's going to be a lot of pasta and chicken 44 years, you know travels meeting people's working this a lot of things seniors outside jumping around family reunions Salon if he allow me to go through few days in the hospital.

27:18 And you put both teams in a balance. Then he gave me a lot of things that are worthy.

27:28 Even when we had to drink the theorist, yeah.

27:38 He gave you a lot of leg of days where you're not inside the hospital, which is true to me. He's giving me a lot of time where I'm not.

27:48 I do hate the times that I'm in but like you said it's all part of it's all part of life.

28:00 And is also like you were saying like I'm not the only one that sick and once you kind of realized I like how you be surprised how many people are sick in this world? Like it looked perfectly healthy. And without you even noticing they have diabetes they have

28:22 What it can be like something some kind of blood disorder or or or stuff like that and even even worse so it to put myself like if I were to rank myself in like 0 being the worst, I can't move in 10 being perfectly healthy. I'm pretty high up though. I I don't know what I have.

28:43 I can still move I can still breathe. I can still travel I can I can do things that other people cannot.

28:50 Which is one of the part of that I understand from your from your

28:55 Point but for mine kind of like it emphasized too because I can appreciate a little bit more because my my struggle has been how do you say the word like unpredictability with that is I don't really wear like a t like you you can't predict anything with me. I can't plan too far ahead. It's always been like that for a while for a while like for a long time. So with that cap in in in life, you kind of appreciate

29:28 At times a bit more, you know, you appreciate people food games laughs fries, you will appreciate a lot of things and it's it's Amplified because you don't know what tomorrow comes and I guess that when I'm a bit older when I'm your age when I'm 44, then I kind of look back and I lived a lot. I lived a lot of time but it's going to be like it's going to be better.

29:59 Then then you are because I will I lived in Amplified life. You know, it's last time I mean by like it's it's been a blessing more than a curse to me.

30:09 In areas, you know, there are a lot of days I have to drink, you know what I mean? And when they really go down they really go down like you remember that time and in in the Presbyterian that was a really down time, but right after that it's like it like it never happened two weeks and I'm out and you remember that?

30:39 The hole, and everything you have to go.

30:45 Down to Noah up looks like

30:52 What doesn't kill you makes you stronger?

30:58 Now, Circleville

31:01 We have that experience.

31:04 What is there instead of feeling?

31:10 Disgrace

31:13 We found lucky you see the different is like when you say half a cup and a half of cup full full.

31:21 Thought you said I was so lucky.

31:25 But maybe somebody will say oh my gosh, these poor guy. You know, I've been through too many now. I'm so lucky. It's a matter of perspective. Exactly and I want you to keep in your mind.

31:50 And that's something that I want you to write it down in your heart what I told you yesterday remember?

31:59 Today you have to wake up by saying tomorrow. I will have another day. I will have another day. This is not the end. Tomorrow's going to be another day.

32:10 Even if I have to pass away you have to pass away.

32:16 Does another time?

32:18 Another cell cycle is going to start.

32:22 Well how I don't know but we know for sure this another Psych.

32:29 We finish with one cycle you going to start another one. I was leaving in Manhattan tomorrow. I might be living in New Jersey. That's another cycle.

32:43 And I'm from here. Hey, I'm planning to go to Florida and I'm going to announce the new chapter of your life.

33:07 I cannot pretend to be a 15 years old anymore, but I neither want to be like an 80 years old lady. So let's leave today. I think today has a lot of challenge for being worried about what's going to happen tomorrow what I have for shoes today's day, and I know that tomorrow is going to rise again to

33:34 That's my advice to you. Even if I had to. Something that I asked God, please let me go first. Let me go first and the day that I leave if I want you to keep saying your kids.

33:50 Leslie one day at a time in my knowing that tomorrow we going to wake up again. That's it.

33:58 That's a you fall get up and keep on going.

34:03 You'll fall again get up and keep on going go something is going to happen for sure when God closes a window is because he's going to open a door.

34:15 And neither some matter how hard the situation might seen that is sold as a whole that you can escape. God is not going to give you was not going to let you go in a process bigger than your strength. He always be with you with this precaution. Like it's not like God Like Jesus Take the Wheel. Yeah. Yeah. Yeah. I like to know it's more like it's not like you're going to go out.

35:04 I hope I helped you out you when I get me. My you know, I'm desperate for my you know, my grandson.

35:10 And you will see that he's going to school at 4, but you but you you have to let him for cuz he's going to learn that's exactly the way that's a street is I know that you falling I know it's hard for you want to go?

35:25 That's the way it is.

35:28 Bruce Willis my kids one day like this is your grandmother Savage World Oliver your grandmother.

35:45 Don't do drugs stay in school. I want you to name in Jessie one of them maybe a third one, and I don't know those thing in America named no, no, no human being there somewhere and the last word for me to you.

36:21 It doesn't matter where you are. And what's going on in your life while station your life. Don't forget to be happy. That's the most important thing. The rest of the thing will pass happiness. Stay with you forever.

36:39 Amen, amen

36:45 I want to thank you for sharing me some words of wisdom and your perspective of life and and and philosophies and naming my kid UCSC at the end of the

37:08 A Vienna by bus if I would have used your own words, like happy face I think is live day by day. And I think is that in the meantime Jesus first and don't forget to be happy. That's something that we say yesterday no matter what be happy.