Two Badass Sisters Inspire the Rare Disease World
Recorded
November 28, 2023
Archived
November 28, 2023
32:28 minutes
0:00 / 0:00
Id:
APP4173908
Description
Suzanne Hoff, 76, listens to Sharon Neumann, 66, relate her remarkable experiences as caregiver from childhood for her younger sister diagnosed with the rare, incurable disease of Fibrodysplasia Ossificans Progressiva (FOP) to their remarkable journey developing world wide support (IFOP)for patients and their families as well as promote medical research to find a cure.Participants
-
Sharon Neumann
-
Suzanne Hoff