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“SMA has never stopped me”

Soyer and his father describe what their lives are like living with SMA.

Jennifer Kucera & Sarah Quinto

Jennifer shared her story about the barriers to healthcare she and others living with a disability face every day when they seek to get the healthcare they need. This has led her to becoming an advocate for health equity for...

Peter and Griffen discuss OCD and SMA

This is a recording of Peter Vieira and his cousin Griffen Kingkiner discussing their personal experiences with OCD and SMA, respectively. Despite having known each other for their entire lives, they have rarely talked about their hardships, so this interview...