Donna York and Marilyn Mongiello

00:02 Hi, my name is Donna 62, but will be 63 and 7 days. I'm in Hillsborough New Jersey. My partner's name is Marilyn and our relationship is close friends. And also share my journey with ALS that I did with my father and she's currently doing with her husband.

00:28 Hello. My name is Marilyn McCoo. Hello, and I am 55 years old and I live in Pennsylvania. And I met Diner along my journey. My husband has ALS and it was a dark journey. And when I met Donna, she was the light in Journey for help diners organization. Hork was how we met. It's a non-profit.

01:03 You want to go first question door, so I can you tell me a little bit about how the Journey of your father in ALS has inspired you to create hork after him.

01:22 Sure, so it's funny because everyone's kind of tends to think that my family really struggled financially, because of what I do, but my dad was a veteran and is a service-related disability. So we had home health aides paid for, we would have gotten everything paid for it, but he only lived eighteen months. So we really didn't need the van and the whole modifications and everything that goes along with ALS because he just didn't live long enough to need them. But the VA does supply all of that to ALS patients. That's only if you're a veteran though, of course, in veterans are 50% more likely to be diagnosed with ALS, but it's the non-veterans that really have a major challenge financially with this disease. So not long after my dad passed. I have a friend that I work with at the Y, that came to me and said, I think my husband has a less, but he won't go to the doctors because he doesn't,

02:22 Insurance.

02:23 And I said, well, why don't you know, what are the symptoms? And I'm not a doctor, but you know, what's going on? And she told me and

02:32 It did certainly sound like ALS, Maryland. Amyotrophic lateral sclerosis.

02:39 Correct with ALS stands for. I never know what I said. You know, I realize, I really I'm not a doctor, but it does sound like some of the symptoms. And at the time, I think he had had to leave his job because he was showing weakness in his hands. And so that think that's the reason I didn't have insurance. She work with me at the Y. So, long story short. He did end up being diagnosed with ALS and because of that, she had to quit her job at the Y and stay home to take care of him because nobody pays for home health, aide. Nobody pays for that, no insurance nothing. So you can't leave in this patient alone.

03:29 So she had to quit her job at the home. So they had to live on Social Security which is really not when your New Jersey, you can't live on Social Security, most places are kept it live on it. But in New Jersey is really difficult. He ended up falling once and she wasn't there. So that's why she ended up leaving her her job. So she could be home with him. He fell again and hit his head and ended up in the hospital and never came out. So it really wasn't the ALS that killed him. It was the fall which is very common ALS patients because once they have that weakness in their arms and hands, it can't stop their fault with that stops are Falls their head when it hits the ground.

04:11 When was all said and done, she was financially devastated her house was in foreclosure. She had absolutely nothing left. So, I think I just started hark at that time or it was thinking about starting Hark and you know, what will pay for your husband's repast. I meant, I had like $2,000 in the bank and it was $1,000 or something and it just started from there. And then my thoughts always weatherman. I want to seven kids and five of us to live close to my dad. We kept him home. He was sick. We took turns taking care of him. We all live, close enough to be there, but still at a lot of points, we had to hire home health aides to come in and help because we all work with our jobs. We all, we couldn't be there 24/7. And that's what he needed. And my thought was, oh my God, I can't even imagine if I had to do this alone. It was just me by the only daughter.

05:09 How would I would have ever gotten through this? And and that was with a veteran who had, you know, how they pay for home health aides. And what do people do that, don't have this advantage and don't have a family and don't have any support. And I started looking for the organization's or, you know, anything out there that would provide resources and there was very little, very little out there. And so,

05:36 I kind of just said well, why not me? Take a leap of faith wing it and let's see what happens. What, what I find interesting with Donna story, is that her father passed, but she made a difference, like she could have put a LS behind her but she kept thinking about that were in her shoes and she made such a big difference and most nonprofits out there or really geared towards the Cure and there is no cure for ALS. Okay, there a mean right now. There was no cure that hasn't been a cure and but people need to live with ALS and Donna is one of the only nonprofit that actually helps people live with the disease. My husband is living with the disease for six years and I'll be honest.

06:36 When I soared, when I met Donna we were we really in a dark journey and she really put light in our journey and I actually thought, maybe I could actually help my husband and maybe I could get him the resources that I needed. She she and, you know, it's just a wonderful story about Horchow. She's honoring her father and, you know, his battle with ALS and she really made a difference.

07:06 Yeah, I think what, you know to Bar Louie talked about.

07:11 When my dad passed, I was in 2009. So, it was well before the ice bucket challenge, you know, which everybody, you know, sort of brought a l l s more out into the spotlight, but then, I mean, no one knew anything about I remember cuz he used to come to America to why the time he used to come every day. And so everybody that work there with me, saw his decline from the strong. Man, you know, golfing play, tennis coach all the sports and mean this was like a, you're the consummate athlete. I mean, he thought all seven kids, every sport we played and he just slowly and, you know, Maryland because you saw with Frankie just slowly declined, like he started walking in with a cane and then he started walking in with a walker and then the the last time he was at the Y.

07:59 He sat in my office and said, you need to get me a ride out of here, like from my office, out to the car. So, what do you talk about the cars outside of those know, I can't walk out the door. I can't do it anymore. But what's interesting about the disease is his mind.

08:17 You know, his mentation is exactly the same before the disease. He's completely the same person personality. It's just that his voluntary muscles are not working.

08:33 Yeah, and so we ended up ended up, pushing them out on my office chair, and the wheels and my office here, and put them in the car. Do you know? It took him home? And he passed away two weeks later, but on his own terms, and I think that's important real estate. It was on his own terms. Like he refused any medical intervention. He didn't want a feeding his start in his mouth was bulbar. So that was the first thing to go. We couldn't swallow. That's the first thing that you know, really deteriorated quickly and he he didn't want a feeding tube cuz he didn't want to live like that. But the thing from me, I think what I, what I do for a lot of people now, as well as we had no one to talk to about this disease. No one knew anything about it. There was no one to call and say,

09:16 You know, what's going to happen or what? Do you think I should do, or anything like that? And when I finally did get to talk to somebody, it was about a year later, the person, he lost his 33-year old, son to it. And we said, we talked for two hours and cried and it was like God, finally, somebody understands how devastating this disease is for the entire family. So, I think sometimes two for me and I think that's where Marilyn our friendship grew was just talking about, just talking about it, you know, some of them, you know, you're going through it now. Already went through it and I just think cuz you can't. I mean, everybody in the why was going with your father was stroke is your father drunk, you know, cuz it's his words were slurred. That's what happens. You know, I might know, is i l s in the end. They just were there. Just look at me. Like, what's that?

10:10 And then I would say Lou Gehrig's Disease and they would say, oh, yeah, I know all about that. Like no, you don't know, you really don't, you know, something called Lou Gehrig's Disease, but you can't possibly have any idea how devastating is. If you've never personally witness someone you loved.

10:26 Battle or die of it. Though. There is a difference between how her Father John his father chose to go. He had no medical interventions. And now in today's technology. There are more people that are taking palliative treatment and that is a feeding tube. That is a ventilator that is, you know, different modifications. So what that needs is home modifications that needs mobility vans. It needs friends, that are accessible and when the person is not working because they have a lasting it disabled and their loved one is taking care of them. So they can't work. Where do you find the fun?

11:18 You get all these modifications, if the person has a will to live and wants to live like that. So it's a personal choice. But if they want to live, how do you, you know, get the modifications, the tools you need to live and that's weird honors, nonprofit comes, you know, and that's where it came in my journey. We wanted to do homework defications. We wanted him to have a shower. We wanted to him to have a generator for the house because he's on a ventilator. God forbid, the electric, the electricity goes off.

11:59 You can't use, you need a backup and that cost money. We needed to have a ceiling list because you know, my husband's been completely a quadriplegic for almost four years. Now, had to transport him from the bed to the wheelchair. We needed a Mobility van and that's where John has group. They make this. It's called. Hope mobile. Can you tell a little bit about the Hoke mobile. Yes, so it started.

12:32 I think when the first person contacted me and said you don't, you know, do you help with Vans? And I was like, well the way we can help you with with together van is if we host a fundraiser for you, you know because bands are as you know.

12:46 Average 25 to $50,000 for a and that's a used van for a handicap accessible van. So but you know, we wanted, we wanted to start this new program to help people get these bands. Because they say this all the time. I mean I jumped in my car and go wherever I want to go. Whenever I feel like it you take it for granted that ALS patient. If they don't have this band, they are essentially a prisoner in their home and especially those with children that want to be at their children swim meet or beat their children soccer game or be out loud, the family, you know, they can't do it. So we ended up calling it a whole note. The automobile for Paws and Pals is an acronym for people with ALS. And we, we did our first van. It was it was actually the

13:32 Gregoire's was the first automobile. We raised $30,000.

13:37 Bought them the man and gets it into them with the understanding that if and when you no longer need the van, you give it back to hark or you to give to another family that you pass it on to another family in your area. So the sad part comes, when people call me for a van and I say, well we can help you with a fundraiser but it's going to depend on your friends and family to help raise that money because heart doesn't have like a plethora of donors out there. That every time I want to buy van, they're going to give you 30 grand and they say we don't have that kind of support. It won't work. Fundraiser won't work and then there's nothing I can do. But sometimes miracles happen. I consider the Miracles and I just had that situation with a woman in Florida.

14:26 That big organization here called imls. Contacted me and asked if I could help her with a band. So I called her.

14:33 This is. So here's what we normally do. With Vans. We you no help you do a fundraiser, then it goes to a nonprofit and people tend to be a little more generous. And if somebody wants to make a sizable donation, they're more comfortable. Doing it through a non-profit.

14:46 And she said, well, I just did a GoFundMe. So should I wait and listen to what they're going to Target the same people? Yes, if you don't want donor fatigue, no, keep going back to the same people and they really didn't raise that much money on the GoFundMe. So I was a little

15:04 Not certain, they would be able to raise the money and then a day later after I talk, I spoke to her. The one was so sweet. And so nice and has all that ails patients. Are someone contacted me? And said, I'm donating donating. My husband husband left my husband. A last. I'm doing my thing donating. My van to your organization.

15:25 So, I called the woman back and I said, I have a van for you. And she said, what, what did you say? I didn't hear that. I said, I have a van for you. She was waiting in the van for me instead of van was donated to me to park, and I'm going to pay to have it shipped to Florida for you. And she just started crying and just didn't know what to say. And she said, you have no idea how much that means to me. And I said, yes, I do.

15:51 Yes, I do. I know how much it is. We got a hope mobile from Donna and I could tell you, how many years ago. Did we get them five or six, at least now, right, graduations. We've gone to, and how many, you know, Let it Go events. We've gone to and doctor's appointments. And do you know. It made all made Frank's life and our family's life whole again. So, you know, I'm very thankful. What Marilyn did Mitch hasn't mentioned that she has six children. So there was a lot of graduations and sporting events and all those things that Frank got to go to because

16:52 They had the band in order to get him to them. But we also also had home modifications done to our house and Donna was actually, she not only helped with the fundraiser, but she actually helped with managing it. So she not only she had her like, she, she really

17:14 She was a friend, you know, she was a friend and a time of darkness and you know, Donna didn't get anything monetarily out of it or all she gets out of. It is knowing that she's honoring her father. I guess. What, what do you get out of it? Donna? You know, it it's just I always whenever I do like, you know, when we used to do we did a lot of in-person fundraisers, right? What years was in person, you know, in a lot of them, we show our documentary, you know, hope on the horizon. And I always say to people that my father taught me. If you have the opportunity to help someone, you should always take it.

17:56 And it was just the way him and my mother both were, you know, they smell more. Like I said, I want to seven kids and they taught all of us that that, you know, you're you're blessed. I mean, I was being on my dad and Grub in a really great neighborhood in a really nice house and great schools and college paid for the whole thing and we were really blessed. We didn't have any of those struggles that everybody has. You exemplify that quote. And another thing that took my heart with Donna was that there was a man who helped on of. He was his name was Josh Valentine. I've always seen him at fundraisers and I've always seen him just helping Donna and always being part of, you know, trying to help ALS patients. And Donna. Can you tell what happened?

18:56 Yeah, so so as I said, we film the documentary that documentary included, two people hiking the 48 highest peaks, in the White Mountains in one trip and it never been done before. They took an ALS patient up the 45th Peak and Joshua Valentine was the driving force behind that. He really, really orchestrated the whole thing and then once the film was done, you know, him and I went with the Fillmore him in my son and my brother went with the film all over the country to raise money for families. He spoke of harp. And one thing that he always said, and I love this about and he was like a son to me.

19:37 Was how much his life was affected by meeting these ALS families and that what I think it was what I perceived as my own suffering. Like, thing on top of a mountain in a, in a snowstorm. These people would give anything to be there, right next to me, but they can't, cuz I can't walk and they can't sew on March 26th of this year. Josh was killed in a motorcycle accident, 37 years old.

20:05 So, I'm

20:09 But but you made a different, we always started the Joshua, Valentine ALS Adventure, Grant so that we will as much as we can depend on how much, you know, the the fund raises. Every year, we're going to pay for an LS fan, me to go on an adventure of their choosing. And this year we granted it to a gentleman who knows with ALS. He was a veteran but he was diagnosed. I think in 2017. He was given the wrong information. He was told that it was not a service delayed disability. Unless you start the Vietnam War ended up homeless and his wife left him with ALS. Then he found out the truth that didn't matter what you served. It was an ALS. It was a seriously disability and was able to get benefits and now he lives with his two sons, but their dream. Before he you know for as much time he has left is to travel rent an RV.

21:07 And travel the country, but they can never afford the cost of the RV. So we're paying for the RV for them. But this is just an example of how it is. Just the most amazing thing, Donna, like you've given lemons and you make lemonade out of it. It's just unbelievable. How, you know, you helped so many families, especially with home. Modifications. Can you tell what you've done with families with home modifications? Yeah. That's that's the other. You do fundraisers that we do for family because as you know, I mean, they're very costly. I mean, just a bathroom alone is like, $25,000 to modify it to make it handicapped-accessible. So we we've you know, we've done probably I think 10 home modifications for people and if it's like 5,000 or less like somebody just just needed

22:04 I think one of those bathroom, lot of places will do like put in a handicapped tub, or whatever. That's just what they needed and that was a thing for 5,000. So we just paid for that but I'm saying but when it comes to the bigger ticket items that we, we normally need to do a, you know, host a fundraiser. Again, if they have the support of their friends and family to support that.

22:29 You don't take anything monetarily from any of this. Correct hundred percent of what comes in those took directly to the families. And he said to me, you know, it's motivated by love your, you know.

22:47 And it's very, really warms my heart, you know, it's an honor to know you don't have to because, you know, I knew inspire me in my journey. I see how much you've done and, you know, it's a whole world was like, you would have as much. I admire you, and what you do for Frank. We are with six kids and you take care of her ankle by yourself. And this is not taking care of someone who, you know, it's just an inconvenience stages of ALS. I mean, this is 100% dependent on you and what you do to get Frank, what he needs. What you advocate for him just recently was in the hospital.

23:36 You know, for 14 days and do you even said yourself, if you weren't there and you weren't telling these doctors know you're wrong. This that's not what's wrong with them. You need to do this. He would not be here with you anymore. That like speak to how how little the medical community knows about ALS.

23:54 It's it's a very interesting. Well, it's a writ supposedly, a rare disease, but in your more more people, but the one thing about ALS, which is different than most of these cases. Is that the Percy can't move anyting.

24:10 They speak with their eyes, but unfortunately.

24:15 If it's not calibrated correctly, you know, you always have to calibrate it. So it's not like you could leave them alone and they can just communicate. I need something, you want me to write the Toby, his computer that he uses to communicate. And you know, it's just a lot of high-ticket items. I don't need it. And I guess that's how you know, it's Donna's nonprofit. It's just

24:48 Such a gift to the ALS community.

24:51 What do you know we talked about so many ALS patients? Make the decision whether to live or die, literally to live or die, based on what kind of financial burdens are going to be with her family. And that that shouldn't be. That should not be anyone's driving force to live or die. Is how much money is going to cost my family to keep me here. And that's you know, that's the reality of a last though because your point, you know, they need 24/7 care and accessible van. They need their home modify so that their wheelchair can get through it and they can get in and out of that. You know, any of your, the only one taking care of somebody, there's no way you're lifting them need a Hoyer lift, Amy. I mean, it's it's one of the over $200,000, right? A year to take care of keeping ALS patient at home. If he had a caregiver, you know, it is very expensive, having you help people. So people lose their job, you know, they can't work anymore. They're their spouse.

25:48 Can't work because they're taking care of. How can you help people with like electric bills. Can you talk about that about that? Yeah. Yeah, I guess you know because they're waiting for a social security come through or because they're just living on Social Security and they have children and you know, I just had someone contact me that hat. I could think it had been like six months behind on their electric bill. And it was like,

26:14 34 almost $4,000 and they said, can you help with any of it? And I said I'll take care of the whole thing and they're like you'll take care of the whole thing and I can't cuz I'll take care of it for you because I had other things that they they need to taken care of as well. And of course I can take care of all of them. But

26:32 You know, I just I mean again might my my family didn't go through that part of it, you know, my dad was a veteran who had a retirement and we had we had money to do what we need to do for him. I never, I never needed help. We never needed help.

26:48 But again, I just can't even imagine if I to go even that Journey where we didn't need any help, if I was the only one taking care of my dad. I don't know that. I now know how you do it. I really don't know how you do it. Maryland. And I it was only 18 months, my father and and only probably five months of that was where he really needed care. Everyday that you've been your do this day in and day out 24/7. The other thing for me is sometimes, you know, how emotionally I need to talk to somebody and she, she gives me pep talks. I called her up and, you know, you know, but

27:29 I think that the ALS journey is really difficult. But the warrior, the ALS Warrior is also an inspiration and part of my drive and taking care of. My husband is seeing how hard my husband works to stay alive and how hard he you know the will to live to see our six kids grow up to go to graduations. Hopefully to see you. No weddings and grandkids how many girls I have four girls, but you know why? I think that we really need to, you know, also touch upon what a fight.

28:13 It's called the palpation of ALS and their fight is horrific. They can't be anything. The only thing, my husband can move his eyes and you know every day, you know, we do basically everything for them, you know, everything. And so I think that another part of a both of our Inspirations went, you say, Donna is like seeing how hard these patients fight to live? And how I mean, how and how much courage, courage and dignity that they have, you know, I can in and they suffer a great deal of pain too. But I think was trying to and my dad never ever complained about being in pain or you know, he tried to be yummy. He was the same to you point. He was the same person, you know, and he still tried to make jokes, don't understand a word. He said,

29:10 But he would still try to get no talk talk to people and he got out as much as he could. And me. I told you, you know, you came to the Y every day when I work there because it was, it wasn't the exercise that may he did, but it was a social thing. You know, he didn't want to be stuck home by himself all day long, you know, he just needed that little bit to get out so that, you know, what's funny? Cuz I would I would go pick him up when he couldn't drive anymore. And a friend of mine at the wise, you know, said to me one day she was that must be really, really hard for you to have to do all that with your dad. And I said, you know what, I could do this for my dad, the rest of my life.

29:48 And I would never pay him back for everything he did for me.

29:52 So but I also think I ate a hear, what you're saying about your dad? Now. Thanks my husband. When you see somebody suffer like that. I think it's just a human quality to want to help.

30:09 And you know, it's just a human quality. You know, it's like a it's like a gift to me to help him the pills my heart, you know, cuz you see such an atrocity, ALS is such a heinous disease and if you can make their life better, and anyway, I think that as far as both of us, don't you think it is? Your point is horrific. What what they have to deal with too. So it almost more courageous to live with it.

30:46 Then I don't want to do this anymore. So I was looking at some of the questions we were trying to and one of the questions was what is the worst thing about ALS and what's nice about the year was Community issues, especially social media, is that you get to meet a lot of people that have this piece but one of the worst parts of a alessa's, how many of our friends have died from this disease and wouldn't you say that's one of the worst parts of it. It is by far, you know, especially people that I get, you know, I don't get real. I don't get close to every family, I help, but I have gotten close to some. And then when you find out,

31:32 They're gone because it's a lot of loss. ALS is a lot of loss cuz he people that I help no one, no one surviving it. It's just when you know, ll in the woman is in the

31:46 In our film said, ALS is like jumping out of a skydiving plane and wondering whether or not your shoot will open.

31:55 Arwen.

31:57 You know, like any cuz my dad was 18 months and then you know, Martin who just passed was 16 years, but they last on a ventilator. It you just, you just you don't know. And I have something, you know, I have people that call me like a woman, I've been talking to a lot. No, she she called me said, my husband is diagnosed with ALS. I I don't know what to do. Like what's going to happen? And I'm like honestly no one can tell you that. No one can tell you that 6 months from now. Your husband's I can be able to talk and not be able to swallow or not. Go to walk. It could be two years from now, could be 2 months from now. I mean, cuz everybody's different, right? Everybody's journey is different and you just not even die. But, you know, I saw people assemble the doctor said, go home, get your Affairs in order, might go to a new doctor because that doctor does not know how, you know, you have two to five years to live. Get your fears in order. I said, he doesn't know that, I don't know, unless he's God. He doesn't know that because not every single ALS patient. Only lives, two to five years, some live less some one way more.

32:57 And this woman Ellen, she's been living like 14 years. She's still not on a ventilator.

33:04 Let me see. She wrote that she she's confined to a wheelchair but she's not on the ventilator. So it's it's just a very interesting point. When you see one ALS patient. You've seen one ALS patient and that's one of the reasons why I think it's so difficult to find a cure because all ALS patients progressed differently. So when they are testing drugs and the response is so varied that they really can't, you know, get a drug approved and that's that's very difficult. Yes.

33:42 Yeah, but you know, plus I mean to spend, I mean it was around well before Lou Gehrig, but it's been 80 years and zero progress.

33:51 In any kind of a treatment, you know, treatment or if you are, so I'm Marilyn one thing we talked and wanted to ask you.

34:02 How has a less affected your family? How do you, how do your kids deal with it? The first of all, my kids have matured too much. They're dealing with such serious issues.

34:17 And all of my kids plans have changed dramatically instead of going to colleges in different states. They've all stayed local chefs in our house. We have day shift and night shift and the kids.

34:35 It breaks my heart, but they say we have to do the night shift for Mommy because we can't have our mommy help. You know, I'm parents, we have six kids. So they each take a turn doing the night shift for the father and he can't be alone for a second and

34:55 Throughout his progression. Each of my kids have. I'm so proud of him. They have, you know, which tube cheating with ventilator care with transferring with calibrating is Toby. His speech generating device with positioning his arms with dressing him.

35:20 You know, it's a lot and my children have you. No been all gung-ho doll and whatever you and and it's just I'm so proud of them and the love that they have for their fathers. So evident and it's such a wonderful thing to watch. So, I would say ALS has work, you know, you know, we talked about all these negative things about ALS, but I have to say that it has brought such beauty and a different perspective than most families and the children and myself. And I think Frank will realize that, you know, time is never promised, and we appreciate the moment.

36:04 Yeah, and your older daughter ended up becoming a nurse correct? I have two kids. One is working on being a nurse and the other one is in there. So I'm going to be a nurse. I knew that a master's in accounting and you as well, went to University of Pennsylvania, correct? But it's just and it's interesting because Donna had came from a big family and I have a big family and we both can attest to the beauty of family and how we surround.

36:54 The father. And you know, you hear a lot of crazy stories in the world, but you know, this this is a beautiful thing about ALS how the family is just very close and very loving to their father. Yeah, I agree. I think the one thing a little different with my dad was, you know, because we were all older. He was older. And I think the hardest thing for him was for us to have to take care of him after him taking care of us or our whole lives. You know, I think that that was the that was the hardest part but everytime I roll, you know, like my role is more.

37:37 You know, I did all the paperwork for the, for the VA in and that kind of stuff in my brother, you know, my other sister kind of to kick in took more physically care of him and, and that's tough. But I've always said that the ALS Community is definitely not one that you ever want to.

37:56 Be part of if you have a choice.

38:00 But if you don't have a choice, you're never going to find more supportive people in the entire and the community than in this, you know, because

38:09 If you've been through it, you know what that family is dealing with, you know, how hard it is. Unlike anybody who has never been through, it could not understand it and it's very hard for anyone to wrap their head around. Even for me having watching my father, that you could beat your, my could be one hundred percent cognizant and you cannot move, one muscle in your body. You are essentially meals. Toothpaste is described as being buried alive.

38:37 I'm just it, it's just so hard to even fathom that and then being courageous enough to live to be there for your children.

38:46 Find my husband is such a amazing role model to us all. And in fact, when he got diagnosed with ALS, he wants you to make a difference as well. And he made a difference. He went to Washington and he try to make a difference with the Cure and try to get access to different drugs. So yes, I think that.

39:15 Towels are very courageous and their role models. And I think because they're such role models and inspires both you. And I to do what we do, need taking care of my husband 24/7, and you to help other families, you know, hopefully, for you, for a long time to come in and me to spend great, the great conversation. I appreciate you joining me today, Marilyn. So I think it's are being told. It's time to wrap up. So I think it's a great way to end it. How courageous both of our files were? We continue to do what we do in their honor, their memory. Thank you. Thank you for all you do for us. My pleasure.