Merinda Daniel and Tonisha Brown

Recorded March 23, 2023 Archived March 23, 2023 55:34 minutes
0:00 / 0:00
Id: ddv002372

Description

Tonisha Brown (34) and her mother, Merinda Daniel (60), reflect on Tonisha's journey to getting a liver transplant, and the role that community support, advocacy, and faith have played in their lives.

Subject Log / Time Code

TB asks her mom about when she first learned about organ and tissue donation, and her mom recounts their experience finding out about TB's diagnosis and learning that she would need a donation. TB shares what it was like to get the news.
MD talks about how rare it was to hear about organ and tissue donation in their community, and how important it is to have advocates like TB to raise awareness about the importance of transplants.
TB asks her mom what she was like as a child before her diagnosis. They talk about how TB changed after her diagnosis. Her mom remembers her becoming more compassionate and serious about life.
MD remembers TB not wanting to take her medication, but how things changed after a later health scare where TB was hospitalized .
TB reflects on how her appearance changed as a part of her diagnosis, and how doctors dismissed it as allergies and natural changes, and how her peers reacted to the physical changes she experienced.
TB shares how writing and journaling - though they occasionally got her in trouble - helped her a lot and helped her to share her story as an advocate.
MD shares how she has long wondered what caused TB's liver damage, and thinks it might be the antibiotics TB was on frequently for ear aches and TB's journey through the healthcare system all the way up to her diagnosis.
The pair reflect on how their faith was central to getting through the challenges presented by TB's diagnosis and need for a transplant.
TB talks about how many people in the African American community need donations, but how rates of donation from within their community are low. TB reflects on how her advocacy journey began and how she became the poster child of the Life Goes On campaign.
The pair reflect on how they were supported before and after the transplant by their community and the Make-a-Wish foundation. TB later started working with the foundation.
TB asks her mom to share what she would want to tell people who are on the fence about organ and tissue donation. MD shares she would ask others to imagine what it would be like to have a loved one who needed a transplant.
TB shares how needing a transplant gave her a sense of purpose and got her to think about what her legacy will be. She reflects on how heroic it is for families and individuals to make the decision to donate, and that she wants to make the most of her life and not take it for granted.
The pair discuss how TB's health impacted her younger brother.
TB reflects on how her diagnosis impacted her memory and academic performance.
The pair discuss how blessed they felt that TB was able to have children.
TB discusses how she got involved in Gift of Hope.
TB expresses her gratitude for her mother and how wonderful of a mother she is.
TB asks if there is wisdom MD would want to impart on future generations, and M returns the question.

Participants

  • Merinda Daniel
  • Tonisha Brown

Partnership Type

Fee for Service