Two Badass Sisters Inspire the Rare Disease World

Suzanne Hoff, 76, listens to Sharon Neumann, 66, relate her remarkable experiences as caregiver from childhood for her younger sister diagnosed with the rare, incurable disease of Fibrodysplasia Ossificans Progressiva (FOP) to their remarkable journey developing world wide support (IFOP)for...

Darren’s Interview

We talked about my Dad’s life from when he was a child in Australia to when he married my Mom and had me.

Aiden Briesacher and Kelly Barnes

Aiden Briesacher: 2020-11-29 21:07:51 Aiden Briesacher (17) speaks with her Aunt, Kelly Barnes (50), about her life. Travel experiences in India, Japan, London, China, Australia and more as well as childhood memories, life in different countries, and a surprise reveal...